Opinion

Video

Closing Reflection: A Journey of Understanding and Resilience

Panelists discuss how emerging treatments, digital health tools, and enhanced care coordination could streamline disease management and improve quality of life while identifying opportunities to strengthen provider communication and access to resources.

Video content above is prompted by the following:

  • How do you think advancements in paroxysmal nocturnal hemoglobinuria care will impact the patient and caregiver experience in the future?
  • Are there any aspects of your care or communication with your health care team that you feel could be improved?

This program was made possible with support from Novartis Pharmaceuticals.

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